My niece has congenital adrenal hyperplasia. It is a genetic disorder that they discovered when she almost died when she was 9 days old. March of Dimes, Easter Seals and CARES Foundation have been working hard the past few years to get Newborn Screening here in AR, and I *think* the bill is finally going to be funded and passed.
Here is a link to the news story - my mom is Gail Blucker. You can watch the clip from the news as well. They show a few pictures of Em, the very first one is my baby sis and Em!
CARES Foundation is linked on my sidebar - please feel free to check out their site or you can ask questions here.